Who are we. We are a group of transplant families just like you. Our kids have seen more in childhood than most of us will in a lifetime. They are gifted life through our real life super heroes, their donors. And us as families (dads, moms, sisters, brothers and so many more) get to be with our transplant kids in this crazy new journey in life. We are here to offer hope. Hope told through the stories of fellow families who have been there before us. We are hoping that in these stories, we can find strength, courage and resolve. In addition to links to amazing stories of other transplant families, we are offering resource links to many different community resources all here to help us. It really does take a village. And between our family, extended family we call our transplant team and so many others out there willing to help, there is so much knowledge and so many great experiences to be had. Hopefully you will find these helpful in your own journey. Your first source of information should ALWAYS be your transplant team and mainly your transplant coordinator. They have a vast knowledge of all things related to transplant. They are your child’s first advocate outside of yourself.
A teenage boy who received a heart transplant could end up saving another child as a valve from his own heart could be used as tissue to help a young baby. Teenager Sahin Yasar tells how he will be forever thankful to the heart donor who gave him a second chance at life on the moving RTE series Ministry of Hope. The observational series, which follows three Irish chaplains for a year, captures the emotional journey of Dublin lad Sahin as he is kept alive by a machine in hospital while waiting for the life-saving transplant. His mother Tina told how she wept tears of joys when he went into surgery after he was finally matched with a suitable organ. Previously, suitable hearts were available on seven occasions, but would not be a medical fit following tests. At one stage, the exhausted 16-year-old was prepped and ready for theatre when his parents had to wake him to tell him there was yet another setback. Sahin, who was born with cardiomyopathy, a cardiac condition which rapidly deteriorated at the end of last year, spent nearly eight months in hospital before this summer’s life-saving operation in the Mater Hospital. He said on
Preview of New, Improved Transplant Rate, and Waitlist Mortality Models SRTR has updated the transplant rate and waitlist mortality models for the program-specific reports (PSRs) of kidney, liver, lung, and heart programs. The models will be used to derive the expected number of transplants and deaths on the waiting list in the January 2018 PSRs. Read more about SRTR announcement – Preview of New, Improved Transplant Rate, and Waitlist Mortality Models[…]
By Associated Press, WILMINGTON, Del. — Gov. John Carney is signing legislation aimed at ensuring that individuals with mental and physical disabilities are not denied access to organ transplant procedures based solely on their disability. The bill being signed Wednesday prohibits health care providers from deeming a person ineligible to receive an anatomical gift or organ transplant, related medical services, or referrals based solely on a physical or mental disability. The new law will allow a health care provider to take an individual’s disability into account when making treatment or coverage recommendations or decisions, but only to the extent that the physical or mental disability has been found to be medically significant for an organ transplant. Copyright 2017 The Associated Press. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.
Here’s What Every Organ in the Body Would Cost to Transplant
Consulting firm Milliman tallies the average costs of different organ transplants in the U.S. And while most are expensive—some are very expensive. A kidney transplant runs just over $400,000. The cost for the average heart transplant, on the other …
Local boy getting heart transplant he’s needed for years
A child who was born with a rare heart defect is finally getting the heart he always needed. Back in 2014 News 8’s Jenna Morton introduced us to Will Kohn, a kid who had multiple open heart surgeries starting when he was just six days old. At this …
Yorkshire Evening Post
Heart transplant Leeds teenager tackling rugby training
Yorkshire Evening Post
Connor’s father Jevan, 37, of Castleford, said his son was only on the organ donor register for 27 days before he underwent the transplant at Newcastle’s Freeman’s Hospital. Mr Laws, said: “Connor wants to play rugby again, he cant wait to get stuck in.
Hundreds of patients missing life-saving transplants because 177 families of suitable donors not sure of consent …The Sun
Shortage of organ donations led to 457 deaths last year, says NHS …The Guardian
The people in Cornwall dying for a transplantPirate FM
Yorkshire Post –Ilford Recorder 24 –Birmingham Mail –Telegraph.co.uk
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Cary rallies around Georgia teen who needs double lung transplant
The Cary community is rallying around a sick teenager from Georgia battling end stage cystic fibrosis. Stay on top of breaking news stories with the ABC11 News App. Toby Stacy, 15, was diagnosed with the disease when he was just 2 months old.
Donor found, transplant done, but NJ girl with leukemia still needs your help – New Jersey 101.5 FM Radio
Anya LeFrancis (Photo courtesy of the LeFrancis family) CHESTER TOWNSHIP – In March, we brought you the story of young Anya LeFrancis, who has been battling leukemia for the better part of five years. An all-out push for bone marrow donors landed what her donation center refers to as a 10 out of 10 match, but Anya is not yet in the clear. Since undergoing a transplant in mid-June, Anya has been recovering at home, letting her body adjust. According to family friend Carolina Rodriguez, the 9-year-old is about halfway through a crucial, 100-day post-transplant period, and is still having trouble drinking, eating and fighting off nausea. So Rodriguez and others in the community are joining forces with the donation center, DKMS, to raise money and help not only Anya’s family, but also those out there who are still desperate for donors. One of those fundraising efforts is centered at Taylor’s Ice Cream Parlor, which is giving July proceeds from the sale of vanilla and strawberry ice creams (renamed Anya Victorious Vanilla and Anya Strong Strawberry) to the cause. July is National Ice Cream Month, which DKMS community engagement manager Melanie Freeman said is an appropriate tie-in.
This was originally published on this site July 7, 2017 10:35 am Two-year-old Roland Raabe suffers from a rare disorder, and the bills are piling up. Tyler Rickenbach/USA TODAY NETWORK-Wisconsin Buy Photo Roland smiles once he realizes that he is being photographed on April 18, 2017 in Plover, Wis.(Photo: Tyler Rickenbach/USA TODAY NETWORK-Wisconsin)Buy Photo ST. Read more about Plover child with rare genetic disorder receives lung transplant – Stevens Point Journal[…]