Young robotics student and cancer warrior facing stem cell transplant – Orlando Sentinel

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Orlando Sentinel

Young robotics student and cancer warrior facing stem cell transplant
Orlando Sentinel
Grayson’s only hope now — after four 21-day cycles of chemo — is a stem-cell transplant. He is scheduled to be admitted for the procedure on Oct. 26 — after he undergoes a PET scan; eye exam; hearing test; dental exam; CT scan of his chest, abdomen

Delhi: World’s smallest baby gets liver transplant – Hindustan Times

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Hindustan Times
Delhi: World’s smallest baby gets liver transplant
Hindustan Times
Doctors at a private hospital in the city transplanted liver in a baby weighing just 2.1 kg — the smallest baby to have such a surgery in the world. To date, the smallest baby to have undergone a liver transplant and survived weighed 2.59 kg and was
Nigerian baby of 2 months undergoes liver transplant in DelhiZee News
2-kg baby undergoes successful liver transplantThe Hindu
Infant weighing just 2.1 kg has liver transplantThe Asian Age
Calcutta Telegraph –Times of India
all 7 news articles »

‘Be The Match’ Bone Marrow Transplant Organization Changes Local Family’s Lives – TVTV

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‘Be The Match’ Bone Marrow Transplant Organization Changes Local Family’s Lives
Over the weekend, Fairbanks residents were invited to attend an educational event hosted by ‘Be the Match’. Over 14,000 people in the United States alone, are in need of a bone marrow transplant to save their lives. News 13’s Julia Laude talks with a

and more »

What happens when a living kidney donor needs a transplant?

What happens when a living kidney donor needs a transplant?September 5, 2016 by Zhai Yun Tan, Kaiser Health NewsBecoming a living kidney donor can be a heroic act, but it has its downsides: increased risks of health complications and occasionally, diseases that may create the need for the donor to have a kidney transplant later in life.In recognition of these possible consequences, living kidney donors who are in need of a transplant have, since 1996, been given priority status to shorten their time on the waiting list.But according to a study published Thursday in the Clinical Journal of the American Society of Nephrology, prior living donors do not always receive that priority status in a timely manner. Some had to wait for years and go through dialysis before moving to the front of the line – while some possibly never got to priority status.”This is a big deal to donors and the transplant community,” said Jennifer Wainright, an analyst at the United Network for Organ Sharing research department and the study’s lead author. “Living kidney donors should know that they are entitled to priority … if they ever need a kidney, and also that most prior living donors receive their transplant quickly.”Wainright stumbled upon this issue when she was examining data on donors, wait-list candidates and transplant recipients from the national Organ Procurement and Transplantation Network for another project.”We put the original project on hold, explored the data, and figured out a way for UNOS to help transplant programs try to prevent the problem in the future,” she said.The researchers sought to characterize how quickly prior living donors were added to and activated on the transplant list. They studied data related to living donors and their transplant needs from January 2010 through July 2015. During that period, 210 transplant candidates who were prior living donors with priority status were added to the transplant waiting list. As of Sept. 4, 2015, 167 of them received deceased donor transplants, six received living donor transplants, two died, five were too sick for transplants and 29 were still waiting.Because of the “priority” designation, most of these patients were able to receive transplants quickly, the study found. But a number waited a long time. For example, among the living donors studied, only 40.7 percent were added to the transplant waiting list before they needed dialysis, which is a treatment that becomes necessary when the kidneys are no longer functioning optimally. Half of the patients in the study were on dialysis for 332 days or longer before their priority was recognized.The process of requesting the priority status goes like this: If a prior living donor needs a kidney transplant, the transplant program at the hospital will submit information and contact the UNOS Organ Center to request priority. The center is supposed to complete the request within a day. Patients healthy enough to receive the transplant immediately will be listed in an active status.The reasons for the delays in this process detected by the study may be, in part, due to a patient’s ill health or to paperwork and bureaucratic problems. These can include incomplete data submission and insurance issues, or a lack of awareness among patients and transplant programs about living donors’ priority.In an effort to smooth out the process and raise awareness among living donors and transplant programs, UNOS since last year has linked their list of living donors with the current kidney waiting list. The goal is to identify transplant candidates who were living donors but have yet to receive priority status. UNOS will then contact the person’s transplant program to see that the situation is addressed.But there are limitations to the data collection. The data tracking living donors only goes back to 1987, and have only included Social Security numbers since 1994. If a person donated a kidney before 1994 and changed his or her name, UNOS wouldn’t be able to identify the person – thus still missing prior living donors who may have not been informed of their priority status.Another solution Wainright identifies is ensuring use of the current Organ Procurement and Transplantation Network policy that requires transplant programs to inform living donors about their priority on kidney waiting lists if they need a transplant after donation.Between Sept. 2, 1996, and July 31, 2015, a total of 422 living donors were added to the kidney transplant waiting list. According to the National Kidney Foundation, being a living kidney donor is relatively common – there were 5,538 living kidney donors in 2014 compared with 7,761 deceased donors. Living donors may face a 25 percent to 35 percent permanent loss of kidney function after donation on average, but their risks of getting end-stage renal disease is less than 1 percent 15 years after the donation.Peter Reese, assistant professor of medicine at the University of Pennsylvania School of Medicine,

Source: What happens when a living kidney donor needs a transplant?

Mother films baby’s heart taking final beats ahead of life-changing transplant – TVNZ

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Warning: Some people may find the video in this story upsetting. 
A mother whose son had just undergone a heart transplant filmed the old heart as it took its final beats.
Graphic warning: Mother films dying beats of young son’s heart ahead of transplant surgery00:25

Baby Henry was born 12 weeks early and with two chronic heart problems. Yesterday, he was given the gift of a new heart.

Baby Henry was born 12 weeks early and with two chronic heart problems. Yesterday, he was given the gift of a new heart.
Source: 1 News/Facebook: Hope for Henry

Nine News reported that mother Mollie Dolan had been documenting the medical journey of son Henry, who was born 12 weeks premature.
Henry was born with two chronic heart problems – truncus arteriosus and mitral artesia – and a transplant was the only option.
In the video, the old defective heart sits in a white pan beating very slowly as it expires, in a hospital in Minnesota.
Ms Dolan posted that she was overwhelmed with joy when she heard that a heart had become available and gave thanks to the family of the donor.
“A miracle given to us, by a family who is enduring tremendous heartache and pain. What incredible strength they must possess.”

Woman born with a half a heart gives birth to daughter 10 years after transplant saved her –

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Woman born with a half a heart gives birth to daughter 10 years after transplant saved her
Miss Robinson, 24, from Horden in County Durham, was born with half a heart, meaning she only had one ventricle and two chambers.

But against all the odds she and boyfriend Shaun Wright, 24, were told they were having a baby at a routine GP appointment last December – and the pair could not be more pleased.

Throughout her childhood, Miss Robinson had operations to rectify her heart condition before going into hospital aged 14 with the hope an operation called Fontan surgery would strengthen her one ventricle.




How six healthy kidneys saved 140 lives – Business Insider

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kidney donorsEach of these six people donated a kidney to a stranger. Courtesy Tyler Weig, Paula King, Kathy Hart, Jennifer Barrett; Facebook/Rick Ruzzamenti, ZUlly Broussard

The INSIDER Summary

• There are thousands of Americans in desperate need of a kidney.

• There’s genius solution known as a kidney transplant chain.

• But chains can’t start unless someone donates a kidney to a stranger.

Every year, 4,500 Americans die waiting for a kidney transplant — but that’s not always due to a lack of willing donors.

In fact, many people in need of a kidney have family members or friends who want to donate. The problem is that you can’t accept a kidney from just anybody: Donors and recipients need to go through a series of medical tests  to determine whether they’re a good match and whether the transplant will be successful .

So what happens when you’ve got a willing donor, but he or she isn’t an acceptable match? That’s where kidney transplant chains come in.

Transplant chains allow willing donors to give kidneys to anyone who’s a good match — even if that person is a stranger who lives hundreds of miles away.

Hospitals and transplant centers (often with the help of donor databases like the National Kidney Registry ) can link up several non-matching pairs of patients and willing donors, then shuffle around the available kidneys so that all the recipients end up with the organ that’s the best fit for them, regardless of their relationship with the donor. 

It’s a relatively new innovation in the medical world: Simple kidney swaps between two pairs of unrelated people happened in the ’90s, but the concept of a transplant chain  wasn’t reported until 2006.

But chains can’t start without someone offering up a kidney to a stranger. 

Kidney transplant chains depend on individuals known as non-directed — or altruistic — donors. So far, about 1,700 Americans have become altruistic donors. Tyler Weig is one of them.

tyler weig post surgeryTyler Weig recovers after surgery in 2013. Courtesy Tyler Weig

But it wasn’t as if he woke up one day with his mind set on donating. Weig, 33, of Iowa, was browsing Facebook when he saw a post about a man who needed a kidney. A few months later, the man re-posted his plea. He still hadn’t gotten an organ.

“I thought, “Well, shoot. There’s lots of people who liked it and shared it. I thought he’d have a kidney by now,'” Weig told INSIDER. “But then it kind of hit me that maybe I’m doing what everyone else is doing just hoping that he gets it.”

So Weig got tested at a local transplant center to see if he was a match for the man on Facebook. He wasn’t, but in the process, he learned about altruistic donation and kidney transplant chains. The more he learned about the concept, the more it amazed him, and soon, he decided to donate.

Here’s how chains actually work. 

Weig kick-started a chain of five transplants. Here’s how it went down.

Weig’s kidney eventually went to a complete stranger named Lance Beyer. Lance’s wife, Julie, had wanted to donate to him, but the two didn’t match. Since she was already willing go through with a donation, Julie gave a kidney to a different stranger a man named Jay Lindahl . Lindahl and his friend Mike Dodge weren’t a match, but Dodge passed a kidney onto another mismatched pair: Nick Titus and his aunt, Mary Sleeth. Sleeth donated a kidney to Nerissa March, and finally, Nerissa’s husband, Peter, completed the final link of the chain, giving a kidney to Dawn Inman.

BI Graphic_Kidney transplant chainINSIDER

All 10 surgeries happened over the course of three days at Mercy Medical Center in Des Moines, Iowa, the Mason City Globe Gazette reported at the time.  

Other donors have kicked of chains of staggering length: Rick Ruzzamenti, 49, of California, was the first donor in  a chain of 30 transplants. Kathy Hart, 49, of Minnesota, started a  34-transplant chain. Paula King, 48, of Georgia,  launched the longest chain in US history  to date, with 56 transplants. (It’s actually one long chain composed of smaller chains with several altruistic donors who jumped in along the way.)

paula king kidney donorDonor Paula King, right, with the recipient of her kidney, Lornette Stewart. Courtesy Paula King

INSIDER interviewed a total of six altruistic donors from across the country. Together, their six healthy kidneys resulted in 140 transplants — that’s 140 lives changed forever. What’s even more incredible? Most donors stressed that the decision to donate was an easy one. 

“I ran into an acquaintance and he said, “What on earth made you do decide to do that?” donor Jennifer Barret, 37,  recalled. “It honestly baffles me that anyone would have to ask.”

But, for most of us, the idea of going under the knife for a stranger seems almost absurdly generous. So what made them do it? Here’s how all six donors explained their choice

To learn more about transplant chains and becoming a living kidney donor, visit the National Kidney Foundation .

Read the original article on INSIDER. Follow INSIDER on Facebook. Copyright 2016. Follow INSIDER on Twitter.

XynManagement Launches XynQAPI Transplant Quality Management Tool at 3rd Annual Transplant Quality Institute … – Business Wire (press release)

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DENVER–(BUSINESS WIRE)–XynManagement today introduced a powerful new application for managing and analyzing a transplant center’s quality program. The XynQAPI application was officially unveiled at the 3rd Annual Transplant Quality Institute (TQI) meeting in Denver. The easy-to-use, web-based tool simplifies and expedites regulatory reporting processes (F-QAPI and UNOS/SRTR), as well as automates and analyzes quality and outcomes data in real-time.

“We’re offering transplant program administrators and managers the tools needed for simplified, single-source, quality data collection, analysis and reporting,” said Mark Schnitzler, Ph.D., a XynManagement Co-founder and nationally recognized expert in the use of advanced statistical techniques to study transplant care. “The result is less time spent on data collection and more time spent on quality improvement, leading to better outcomes with greater volume.”

Organ transplant programs must engage in extensive collection, analysis and reporting of information. Schnitzler explained that transplant centers generally do well collecting data, but stumble when it comes to organizing, displaying and actually using it to drive improvements and meet regulatory and program specific reporting (PSR) requirements.

Compliance problems and failure to meet minimum conditions of participation (COP) set by the Centers for Medicare and Medicaid Services (CMS) can result in serious consequences, including loss of Medicare reimbursement for transplant services or termination of the transplant program.

“Most quality managers are under-equipped, using older programs and tools, including paper binders, spread sheets for data analysis, word processing for agenda and minutes, and PowerPoint for presentations,” said Schnitzler.

As a single-source transplant quality management tool, XynQAPI gives transplant administrators actionable insights to meaningfully interact with data and improve their quality programs. Unlike current manual data methods, XynQAPI is the only system available to expedite and automate successful end-to-end CMS F-QAPI reviews and real-time transplant center quality data management. It is also the only real-time quality data visualization and decision making tool.

For more information visit the XynManagement team during the TQI meeting or visit our website to schedule a demo.

About XynManagement and XynQAPI

XynManagement solutions address key problems facing transplant centers today. Our software and data analysis tools enable transplant professionals to assess candidate and donor risk, track and monitor center-level performance in real time, meet regulatory requirements and enhance patient care. XynQAPI is a single-source transplant quality management tool that gives transplant administrators actionable insights to improve quality program effectiveness. Only XynQAPI simplifies and expedites F-QAPI processes, as well as automates and analyzes quality and outcomes data in real-time. For more information, visit, call (713) 621-7436 or connect with us on Facebook, LinkedIn or Pinterest.

Britain’s youngest DOUBLE lung transplant patient: 5-month-old is even well enough to be a bridesmaid at her parents … – Daily Mail

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  • Imogen Bolton was born suffering from  Alveolar Capillary Dysplasia
  • It meant her lungs had not formed properly and only hope was a transplant
  • Weighed just 10lbs when she had operation at Great Ormond Street
  • Last month she was bridesmaid at parents’ Hayley and Jason’s wedding 

Kate Pickles For Mailonline


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Meet Imogen Bolton – Britain’s youngest double lung transplant recipient. 

She received her new lungs when she was just five months old after she was diagnosed with the rare illness Alveolar Capillary Dysplasia (ACD).

It meant her lungs had not properly formed.

Weighing less than 10lbs, she underwent a seven-hour operation earlier this year at Great Ormond Street Hospital (GOSH). 

Experts believe she may be the youngest child in Europe to have ever had the surgery.

Imogen Bolton was just five months old when she received her new lungs at Great Ormond Street Hospital

Imogen Bolton was just five months old when she received her new lungs at Great Ormond Street Hospital

Imogen appeared healthy at birth but developed a respiratory infection when she was a few weeks old. 

She was admitted to hospital near her home in Brighton several times with breathing problems.

At one point her condition deteriorated rapidly and she needed urgent treatment to help her breathe.

She was then transferred to the Evelina Hospital in London where a series of tests and scans diagnosed ACD, an extremely rare condition with only a few known cases worldwide.

Doctors put Imogen on the transplant waiting list, despite very low odds that a suitable donor would be found. 

But just a week later, the family heard news of a match.

Imogen’s mother, Hayley, 30, said: ‘It all happened so suddenly. We knew most children needing organ transplants spend weeks and months waiting, and some never get the call.

‘After the complete emotional rollercoaster we had all been through, it was a huge relief to see things heading in the right direction. 

In September Hayley and Jason got married and Imogen was able to go to the ceremony in her bridesmaid’s dress following the surgery

In September Hayley and Jason got married and Imogen was able to go to the ceremony in her bridesmaid’s dress following the surgery

Baby Imogen received her new lungs when she was just five months old after she was diagnosed with the rare illness Alveolar Capillary Dysplasia

Baby Imogen received her new lungs when she was just five months old after she was diagnosed with the rare illness Alveolar Capillary Dysplasia

‘The difference was amazing, and a few weeks after the transplant Imogen was back to her usual chirpy self with a smile for everyone and was back on solid food as we tried to get her weight back on.’

After several months in hospital, Imogen has now been discharged and is back home. 

She returns to GOSH for regular clinic check-ups.

Dr Helen Spencer, respiratory paediatrician and clinical lead for Great Ormond Street Hospital’s lung transplant service, said: ‘Imogen was born with a very rare lung condition that would have proved fatal without urgent lung transplant surgery. 

‘As she was so small the surgery was particularly complex but she has bounced back and it’s fantastic to see her doing so well.

‘The reality is that Imogen wouldn’t be here today if the donor family hadn’t made the decision to donate and we are all hugely thankful to them.

‘Sadly, last year 15 children across the UK died while waiting on the list for a suitable donor organ, so it’s vital that everyone considers signing up to the register. 

‘It really doesn’t take long to sign up, so we are urging people of all ages to do this as soon as possible, and to discuss donation decisions as a family.’ 



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Transplant Psychiatry: An Introduction, Part 1 | Psychiatric Times

September 28, 2016Comorbidity In Psychiatry

Academy of Psychosomatic Medicine (APM), Transplant Psychiatry Special Interest GroupOrgan transplantation is the accepted treatment for many patients with chronic or acute advanced organ disease and certain types of cancer. Currently, there are over 120,000 patients in the US waiting for solid organ transplant (nearly 100,000 are kidney transplant candidates), and the wait list continues to grow. However, because of the shortage of donated organs, only about 30,000 transplants are performed each year and 10% to 18% of candidates will not survive to transplant. Most wait a year or more for a donated organ, while many kidney candidates wait 3 to 5 years.

Most organ transplant programs recognize the need for a multidisciplinary team to assist with the complexities of transplant patient care. Moreover, the United Network for Organ Sharing recognizes that “mental health and social support services are essential for the total care of transplant recipients, living donors and their families” and thus requires the availability of such services by trained individuals.1 Historically, psychiatrists and mental health professionals contributed primarily during the pretransplant evaluation phase, assisting transplant teams in determining the suitability of candidates for transplant and preparing candidates for the procedure.

Over the past 3 decades, the increasing numbers of candidates and recipients as well as the expansion of organ transplantation to more than 500 programs in the US have both increased the demand for mental health services within transplant programs and fostered the development of a specialized area of transplant psychiatry. Psychiatrists are increasingly considered integral members of the transplant team and are often embedded within the transplant units and clinics to provide continuity of psychiatric care.

The limited organ availability; extensive health care resources required; and degree of personal responsibility, self-management, and strict adherence to transplant directives needed of transplant recipients for successful outcomes necessitate careful candidate selection. Psychiatrists evaluate the extent to which psychiatric, psychological, and behavioral disorders may contribute to poorer outcomes and assist in designing treatment plans to ameliorate identified risks.

Following transplant, psychiatrists may be consulted on psychiatric or behavioral issues as they arise during the recovery period. Innovative strategies for dealing with these complex patients have been developed, including the adaptation of common therapeutic strategies specifically for transplant-related scenarios.

Phases of transplant

Organ transplant is not a singular surgical event but a series of transitions between specific phases beginning with the diagnosis of advanced organ disease. From referral to the transplant team to long-term adaptation to life as a transplant recipient, each phase is associated with different stressors that require different skills and resources from patients, their family and friend caregivers, and the mental health clinicians who care for them. The Figureillustrates the potential medical and psychosocial stresses inherent in each phase for patients and their caregivers.

The pre-transplant phase is commonly associated with anxiety over being evaluated and accepted onto the transplant wait list. Many patients and their families initially experience elation and relief over being listed but then find the uncertainty of waiting for an organ to be the most psychologically stressful part of the transplant experience. Those who have been chronically ill may look forward to transplant with its potential to improve their quality of life, while those who became acutely ill may view transplant with apprehension. Patients can experience a slow decompensation or rapid progression from acute exacerbations. Wait-list patients can experience medical events (eg, infection, stroke, myocardial infarction) that may make them ineligible for transplant.

Read more at : Transplant Psychiatry: An Introduction, Part 1 | Psychiatric Times

Inspiration + Education : . . . . for parents of children who are going through transplant

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