Transplant Families

Resources + Support for the Pediatric Transplant Community

Italian Boy Becomes Youngest Patient Bridged to Transplant with the SynCardia Total Artificial Heart – Business Wire (press release)

This was originally published on this site Business Wire (press release) Italian Boy Becomes Youngest Patient Bridged to Transplant with the SynCardia Total Artificial Heart Business Wire (press release) Andrei, 12, is the world’s youngest patient to be bridged to transplant with the SynCardia Total Artificial Heart. He is pictured after his heart transplant with Read more about Italian Boy Becomes Youngest Patient Bridged to Transplant with the SynCardia Total Artificial Heart – Business Wire (press release)[…]

Redding baby gets a lifesaving heart transplant – KRCRTV.COM

This was originally published on this site KRCRTV.COM Redding baby gets a lifesaving heart transplant KRCRTV.COM REDDING, Calif. – A baby boy born with a heart defect got a heart transplant on Friday. Brayden McQuillan, who is five months old, was born with Hypoplastic Left Heart Syndrome meaning his left side of his heart was Read more about Redding baby gets a lifesaving heart transplant – KRCRTV.COM[…]

698 beads tell the story of baby’s heart transplant – Wichita Eagle

This was originally published on this site Wichita Eagle 698 beads tell the story of baby’s heart transplant Wichita Eagle But her aortic arch had to be reconstructed for transplant, making an already-tricky newborn transplant even more complicated. Only 22 heart centers in the world do more than 10 infant heart transplants each year. St. Read more about 698 beads tell the story of baby’s heart transplant – Wichita Eagle[…]

Young Calgary cancer patient recovering from liver transplant needs ‘a miracle’ – Globalnews.ca

This was originally published on this site Globalnews.ca Young Calgary cancer patient recovering from liver transplant needs ‘a miracle’ Globalnews.ca A Calgary family whose GoFundMe was able to raise over $300,000 to pay for an out-of-country liver transplant for their three-year-old daughter posted an update to Greta Marofke’s recovery, but it wasn’t the news loved Read more about Young Calgary cancer patient recovering from liver transplant needs ‘a miracle’ – Globalnews.ca[…]

Camp Okawehna

We are highlighting transplant camps for the month of June. For the third week of June we are highlighting Camp Okawehna near Nashville, Tennessee. Camp Okawehna was founded in 1974 by Dialysis Clinic, Inc., (DCI), in order to  promote the overall wellbeing of pediatric renal patients and their families by supporting them in developing lives Read more about Camp Okawehna[…]

NC teen heart transplant recipient enjoying Hawaii trip thanks to Ellen | WNCN

By Sharon Tazewell Published: June 14, 2017, 10:33 pm RALEIGH, N.C. (WNCN) — There is a new update on Al J Jeffries the now 14-year-old who had a heart transplant last year at UNC Children’s Hospital. Albert Jeffries, or Al J, who waited 13 years for a heart transplant, appeared in September with his mom Read more about NC teen heart transplant recipient enjoying Hawaii trip thanks to Ellen | WNCN[…]

SRTR

What patients (and transplant families) want to know

Transplant families are happy to help the Scientific Registry of Transplant Recipients (SRTR) continually improve reporting with transplant patients and families feedback. An Agency for Healthcare Research and Quality (AHRQ)-funded grant has developed a brief survey to ask transplant patients what they might want to know from the Scientific Registry of Transplant Recipients (SRTR) website, Read more about What patients (and transplant families) want to know[…]