"Transplant Reunion" to Draw Organ Recipients from Near and Far – KHGI-TV/KWNB-TV/KHGI-CD-Grand Island, Kearney, Hastings

Transplant News for July 18th from 04:38:

  • "Transplant Reunion" to Draw Organ Recipients from Near and Far – KHGI-TV/KWNB-TV/KHGI-CD-Grand Island, Kearney, Hastings – Source: Nebraska.tv
    Posted: Jul 13, 2012 6:59 PM

    Omaha– Transplant recipients from all over the country, including one Kearney teen, will gather in Omaha for a reunion of sorts.

    It's a trip they made before, but under much different circumstances. This time, they won't be rushing to the hospital for a life-saving organ transplant; they'll be going to a hotel for a weekend of fun and learning at the Transplant Reunion.

    "More than anything, the Transplant Reunion is a celebration," said Alan Langnas, DO, chief of transplantation at The Nebraska Medical Center. "The physicians, nurses and coordinators have been with these families through the most challenging times in their lives. It's incredibly rewarding for us to see them outside of the medical center growing up, raising children, and having grand children."

    Read more (http://www.nebraska.tv/story/19023733/omaha-transplant-reunion-to-draw-in-recipiants-near-and-far)

Newcastle teenager scoops European Transplant Games medal

Newcastle teenager scoops European Transplant Games medal – Chronicle News – News from @EveningChron
Source: Chroniclelive.co.uk
by Coreena Ford, Sunday SunJul 15 2012

A LITTLE over a year ago Ayesha Ahmed’s every breath was agony as she waited hopefully for a lung transplant.Too weak to walk, she was forced to use a wheelchair and spent most of her days at home, hooked up to an oxygen machine to keep her alive.But now the miracle teenager has recovered to such an extent that she won a bronze medal in the 800m in the European Transplant Games.

The 19-year-old, of Fenham, Newcastle, said: “If someone had told me two years ago that I’d win a medal for running I’d have laughed in their face. It feels so good to have this medal.”

On February 13 last year, the former Heaton Manor School pupil made history when she became the youngest person in the world with her condition to undergo a double-lung transplant at Newcastle’s Freeman Hospital.

Read More (http://www.chroniclelive.co.uk/north-east-news/evening-chronicle-news/2012/07/15/newcastle-teenager-scoops-european-transplant-games)

Preparing Your Child For Surgery – Book List

The Children’s Hospital of Philidelphia (CHOP) has a terrific list of book recommendations for you and your child before or during hospitalizations.

Please check out this excellent resource (http://media.chop.edu/data/files/pdfs/surgery-guide-surgery-helpful-books-to-prepare-your-child.pdf).

Preparing Your Child for Hospitalization

Great article from MedStar Georgetown University Hospital on how to prepare children of all ages for a hospital stay.  This page even has a fun video for younger patients to explain what they might see while they are in the hospital.  It also give a good checklist for parents on what to expect pre-admission and during the hospitalization.

Read more (http://www.georgetownuniversityhospital.org/body.cfm?id=555897)

Taking care of yourself (as a parent) while your child is in the hospital

Although this article was written for NICU parents, it is definitely applicable to all of us transplant parents as well.  This very informative checklist from New York Presbyterian, Morgan Stanley Children’s Hospital is available for all.

Read more (http://childrensnyp.org/mschony/nicu-taking-care-of-yourself.html)

Improved outcomes in pediatric liver transplants don’t have to mean higher cost

Transplant News for July 11th from 17:11:

  • Improved outcomes in pediatric liver transplants don’t have to mean higher cost – Source: medicalxpress.com
    July 10, 2012

    The study, published online ahead of print in the journal Pediatric Transplantation, looked at 52 children paired up with 53 living donors who underwent transplantation at Hopkins between 1992 and 2010. The researchers found steady improvements in survival rates and overall outcomes without a significant increase in healthcare spending.

    More than 500 U.S. children receive liver transplants each year, and living donor transplants have become a mainstay in treating end-stage liver disease and a life-saving measure that reduces wait list time, the researchers say.

    Read more (http://medicalxpress.com/news/2012-07-outcomes-pediatric-liver-transplants-dont.html)

The Gift of a Lifetime

Take an amazing tour through the process of transplant in several different views.  Even though these are all adult patients, this photo documentary highlights the fascinating trials and triumphs that many transplant patients face in their own personal journeys.

The Gift of a Lifetime also has interactive models of the human body to demonstrate how the body reacts to all it has to go through for transplant.  As well as a brief history of transplantation.

One unique portion of the website is the educator’s resource.  If you have a teacher that would like to know more about how to present this material for children, this is an excellent tool.

Please visit The Gift of a Lifetime (http://www.organtransplants.org) for more information.

TheRecord – Trillium website to provide more transplant information

Transplant News for July 9th from 04:21:

  • TheRecord – Trillium website to provide more transplant information – Source: TheRecord.com
    Barbara Turnbull Sun Jul 08 2012

    While a close family member awaited a lung transplant in 2010, Joe Menna craved information.

    How many others with the same blood type need lungs? What are their ages? Why and when are people removed from the lists?

    Frustrated by a dearth of Ontario statistics compared to other jurisdictions, Menna was compelled to act.

    Thanks to his insight and tenacity, some of the information he sought will be available starting Monday on the Trillium Gift of Life Network website, www.giftoflife.on.ca.

    Read more (http://www.therecord.com/living/article/757197–trillium-website-to-provide-more-transplant-statistics)

NI Celebrates National Transplant Awareness Week | French Tribune

Transplant News for July 9th from 04:19:

  • NI Celebrates National Transplant Awareness Week | French Tribune – Source: FrenchTribune.com
    Submitted by Nimisha Sachdev on Sat, 07/07/2012 – 04:54

    Northern Ireland is celebrating National Transplant Awareness Week from July 9 to August 15, 2012. On the wake of the event, the NI officials have been asking people to support the event.

    One of the novel things being introduced in this year’s transplant week is inclusion of a theme. This year’s theme is ‘Pass it On’, which means encouraging more number of people to sign register for organ transplant.

    Read more (http://frenchtribune.com/teneur/1212169-ni-celebrates-national-transplant-awareness-week)

Little Lottie, the youngest Briton to survive a liver transplant, celebrates first birthday | Mail Online

Transplant News for July 8th from 01:55:

  • Little Lottie, the youngest Briton to survive a liver transplant, celebrates first birthday | Mail Online – Source: DAILY MAIL REPORTER
    PUBLISHED: 11:05 EST, 6 July 2012 | UPDATED: 11:05 EST, 6 July 2012The youngest person in Britain to survive a liver transplant has defied the odds to celebrate her first birthday yesterday.

    Lottie Bryon-Edmond was given just hours to live after being born with a rare condition which gave her toxic levels of iron in her liver.

    She went straight to the top of Britain’s transplant list and clung to life for five weeks until a suitable donor was eventually found.

    Read more: http://www.dailymail.co.uk/health/article-2169763/Little-Lottie-youngest-Briton-survive-liver-transplant-celebrates-birthday.html#ixzz1zzZ0SeRG

Inspiration + Education : . . . . for parents of children who are going through transplant

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