INDIANAPOLIS — After seven years of waiting, a Lawrence teen is preparing to receive a life-saving bone marrow transplant. Darrell Collins has severe aplastic anemia. The rare disease affects his bone marrow and immune system. “Some days I have a hard time getting out of bed. I would feel weak. A lof of things normal kids do, I don’t feel up to,” said Collins. Two years ago, his mother made a plea for members of the community to become bone marrow donors. People stepped up to organize their own marrow drives and fundraisers. Then, Collins got the call. “I’m excited, I mean I’m overjoyed, I mean I can’t really express it. This person is essentially saving my life,” said Collins. Now that there’s a bone marrow donor, Chaklan Lacy says she’s cautiously optimistic. There’s a chance her son’s body will reject the transplant and he could spend up to a year in the hospital. He’ll travel to Cincinnati Children’s Hospital on Sunday to receive the transplant. And his mother has a message for the donor, “Thank you, thank you, thank you, thank you. And thank you again. For saving my son’s life,” said Lacy.
Anya LeFrancis (Photo courtesy of the LeFrancis family) CHESTER TOWNSHIP – In March, we brought you the story of young Anya LeFrancis, who has been battling leukemia for the better part of five years. An all-out push for bone marrow donors landed what her donation center refers to as a 10 out of 10 match, but Anya is not yet in the clear. Since undergoing a transplant in mid-June, Anya has been recovering at home, letting her body adjust. According to family friend Carolina Rodriguez, the 9-year-old is about halfway through a crucial, 100-day post-transplant period, and is still having trouble drinking, eating and fighting off nausea. So Rodriguez and others in the community are joining forces with the donation center, DKMS, to raise money and help not only Anya’s family, but also those out there who are still desperate for donors. One of those fundraising efforts is centered at Taylor’s Ice Cream Parlor, which is giving July proceeds from the sale of vanilla and strawberry ice creams (renamed Anya Victorious Vanilla and Anya Strong Strawberry) to the cause. July is National Ice Cream Month, which DKMS community engagement manager Melanie Freeman said is an appropriate tie-in.
This was originally published on this siteVARGHESE LAB, UC SAN DIEGOPeople with diseases of the blood often need bone marrow transplants to replace their blood-forming stem cells with those from healthy donors. But before those transplants, patients must eliminate their own bone marrow lest it compete with the introduced cells, and that process, which involves Read more about Synthetic Bones: A Better Bone-Marrow Transplant? – The Scientist[…]
This was originally published on this siteGENESEO — Trevor Schefsky’s battle of a rare genetic condition began at birth. Now a sophomore at Geneseo High School, that battle likely will make him miss the start of his high school junior year. Mr. Schefsky, along with his parents, Tony and Lori Schefsky, and hsi brother, Zach, Read more about Geneseo sophomore prepares for bone marrow transplant – Quad-Cities Online[…]
This was originally published on this siteIn 2014, the last year of my bachelors, I was diagnosed with Myelodysplastic Syndrome, a blood transfusion dependent rare disease causing the red blood cells production to cease. I didn’t know at that time what I would have to go through. I got blood transfusions, tried different medicines but Read more about What’s It Like to go through Bone Marrow Transplant – Rabwah Times (press release) (blog)[…]
This was originally published on this siteResearchers at Mount Sinai Health System have discovered a way to predict whether blood cancer patients who received a bone marrow transplant will develop graft-versus-host disease, a common and often lethal complication, according to a study published in JCI (The Journal of Clinical Investigation) Insight. This international study at Read more about Doctors create ‘MAGIC algorithm’ to predict bone marrow transplant patients’ risk of dying – Science Daily[…]