April 13, 2018

National Pediatric Transplant Week

Educational Webinars Offered During National Pediatric Transplant Week

Nearly 2,000 children under the age of 18 are on the U.S. organ transplant waiting list, and 25 percent are children between 1 to 5 years old. Due to the need for greater awareness, Transplant Families worked with Children’s Cardiomyopathy Foundation (CCF), Donate Life America and several other transplant organizations to introduce the first annual National Pediatric Transplant Week to be held April 23-27.

In support of the week, two educational webinars will be offered in collaboration with the Children’s Cardiomyopathy Foundation. We will also be featuring a practitioner’s post by Dr. Kurt Schumacher in collaboration with Sisters by Heart. In addition, we will prelude events to the week by featuring a Facebook Live in collaboration with and via Phoenix Children’s Hospital website highlighting Dr. Brenda Aranda. Further content may be added as National Pediatric Transplant Week approaches.

On Monday, April 23rd from 12-1pm EST, CCF will host a webinar on child life services. Brittany Smith, MA, CCLS, Child Life Specialist at Ann & Robert H. Lurie Children’s Hospital, will be the guest speaker.

Click here to register: https://register.gotowebinar.com/register/4403374034947684865

On Tuesday, April 24th from 12-1pm EST, CCF will host a webinar on medical adherence and transition of care. Dr. Diana Shellmer, Ph.D., associate professor of surgery and psychiatry with the Hillman Center for Pediatric Transplantation, Children’s Hospital of Pittsburgh of UPMC, will be the guest speaker.

Click here to register: https://register.gotowebinar.com/register/317525054145631489

On Wednesday, April 25th Sisters by Heart will publish a practioner’s post on Fontan to Transplant:  Building Teams for Transition. Dr. Kurt Schumacher, MD MS, assistant professor and Medical Director of Pediatric Heart Failure and Transplant Program, University of Michigan Congenital Heart Center and C.S. Mott Children’s Hospital, will be the guest author.

Click refer to http://www.sistersbyheart.org/content/practitioner-posts for more information.

On Friday, April 27th , Phoenix Children’s Hospital and Transplant Families will host a Facebook post airing of our Resource Fair Keynote Building Resiliency Through Your Child’s Transplant Journey with speaker Dr. Brenda Aranda, Ph.D., Director Cardiology Behavioral Medicine Cardiology Department at Phoenix Children’s Hospital and Assistant Professor: Child Health University of Arizona College of Medicine.

Click here to view: https://www.facebook.com/PhoenixChildrensHospital/
We may have late additions near the end of the week. We will follow up if we get notice of these additions.

Although the webinars and papers will emphasize issues related to transplantation, the information will also be useful to many parents of children requiring long-term medical care, as well as transplant candidates and recipients of any organ type.  We encourage you to share these educational resources with the hashtag #KidsTransplantWeek .

We hope you will join us for these informative presentations!