What are Quality Improvement Learning Networks and how can they help your transplant family? Learning Networks are based on the vision of the Institute of Medicine Learning Health System where patients, families, clinicians and scientists work together and use data for clinical care, improvement and research. **1 According to the American Board of Pediatrics, Learning Networks are the best way to achieve population outcomes at scale.
Focus on Outcomes
Networks are particularly important in pediatrics because of the limitations posed by having small numbers of patients at any one site. Learning Networks combine data and ideas across multiple sites and engage patients, families, clinicians and scientists in co-producing measurably improved outcomes. **1 Watch this webinar to get more information on learning networks and what they can do for you (The Power of Learning Networks.)
Learning Network Partnerships
Transplant Families is very proud to be a partner with two learning networks. This means that all members of Transplant Families also have opportunities to participate in quality improvement collaboratives to help multidisciplinary teams of clinicians and staff, scientists and communities to make the field of pediatric organ failure and transplant continually better. These networks span across many different children’s hospitals in order to collect more information to give a better picture of how therapies are making our children better.
Action Learning Network is focused on improving outcomes for pediatric heart failure patients beginning with patients on ventricular assist devices (VAD). Action stands for Advance Cardiac Therapies Improving Outcomes Network they have a mission of uniting providers and families to share data and outcomes transparently, improve education and standardizing best practice in an effort to drive improvement **2
To have your voice known as the parent of a heart failure or transplant child and to join the learning network that includes nearly 30 different children’s hospitals, please visit https://www.actionlearningnetwork.org/ to learn more today about the Action Learning Network.
Starzl Network for Excellence in Pediatric Transplantation was founded in 2017 to honor the life and legacy of Thomas E. Starzl, MD, PhD, recognized as the father of transplantation. The Starzl Transplant Network aims to unite a community of top pediatric liver transplant centers in the United States and Canada that committed to developing and sharing best practices. Their mission is to “To unite big data, technology, patient advocacy and transplant thought leaders to deliver the best possible care and develop new, scalable solutions to pediatric transplantation’s most challenging problems. ” **3
To have your voice known as the parent of a liver failure or transplant child and to join the Starzl Network please visit http://www.chp.edu/our-services/snept today. Or take a look at their latest newsletter..
1.Cincinnati Children’s Hospital Medical Center. “The Power of Learning Networks.” Cincinatti Children’s. James M. Anderson Center for Health Systems Excellence, December 30, 2018. <https://www.cincinnatichildrens.org/service/j/anderson-center/learning-networks>
2. Action Learning Network. “Working together to improve critical outcomes for all pediatric heart failure patients.” December 30, 2018 <https://www.actionlearningnetwork.org/>
3. UPMC – Children’s Hospital of Pittsburgh. “About the Starzl Network for Excellence in Pediatric Transplantation.” Children’s Hospital of Pittsburgh. December 30, 2018. <http://www.chp.edu/our-services/snept/about>