April 13, 2018

National Pediatric Transplant Week

Educational Webinars Offered During National Pediatric Transplant Week

Nearly 2,000 children under the age of 18 are on the U.S. organ transplant waiting list, and 25 percent are children between 1 to 5 years old.  We are very much looking forward to announcing a full schedule of educational opportunities for 2019 to bring awareness to children needing organ and bone marrow transplants.  Stay tuned for details coming soon!

Due to the need for greater awareness, Transplant Families worked with Children’s Cardiomyopathy Foundation (CCF), Sisters by Heart, ACTION Network, Starzl NetworkDonate Life America and several other transplant organizations to bring you National Pediatric Transplant Week that is held annually the last week in April.  If you missed past educational opportunities while they were live, that is alright, we have archived copies to watch at your convenience listed below.

2019 – Upcoming Webinars

Tuesday, April 23rd  from 10 am-11am EST Transplant Families is pleased to partner with the UPMC and the Starzl Network to host Pediatric Transplantation: Strategies for Improvement presented by George Mazariegos, MD, who is Chief of Pediatric Transplantation at UPMC Children’s Hospital of Pittsburgh and Chair of the Starzl Network for Excellence in Pediatric Transplantation (SNEPT). Watch here: https://youtu.be/QocIJ1dhgho

Thursday, April 25th from 12pm-1pm EST Children’s Cardiomyopathy Foundation and Transplant Families will host Bridging to Transplant: Pediatric Heart Failure and Ventricular Assist Devices. David Peng, MD, from C.S. Mott Children’s Hospital at the University of Michigan, will be our guest speaker. Watch here: https://www.youtube.com/watch?v=DZeNPOD0gz4&list=PL16FLl544ygyZTYOO2VmJhlADYT–mpCt&index=20&t=1723s

Friday, April 26th from 12pm-1pm EST CCF and Transplant Families will host a webinar Emotional Considerations for Pre- and Post-Transplant Families.  Dr. Melissa Cousino, who is the attending psychologist to the pediatric heart and kidney transplant programs at C.S. Mott Children’s Hospital at the University of Michigan, will be our guest speaker. Watch here: https://www.youtube.com/watch?v=6tN5VYyUTxQ&list=PL16FLl544ygyZTYOO2VmJhlADYT–mpCt&index=21&t=0s 

Although the webinars will emphasize issues related to transplantation, the information will also be useful to many parents of children requiring long-term medical care, as well as transplant candidates and recipients of any organ type.  We encourage you to share these educational resources and your own children’s and families stories of triumph with the hashtag #KidsTransplantWeek .  Go to Donate Life America to download the entire National Pediatric Transplant Week toolkit for yourself https://www.donatelife.net/pediatric-transplant-week/ .

We hope you will join us for these informative presentations!

Past Webinars – 2018

Monday, April 23rd from 12-1pm EST, CCF will host a webinar on child life services. Brittany Smith, MA, CCLS, Child Life Specialist at Ann & Robert H. Lurie Children’s Hospital, will be the guest speaker.

Click here to view: https://www.youtube.com/watch?v=ZROTBKgioVc

On Tuesday, April 24th from 12-1pm EST, CCF will host a webinar on medical adherence and transition of care. Dr. Diana Shellmer, Ph.D., associate professor of surgery and psychiatry with the Hillman Center for Pediatric Transplantation, Children’s Hospital of Pittsburgh of UPMC, will be the guest speaker.

Click here to view: https://www.youtube.com/watch?v=UYbVQvWWHKU

On Wednesday, April 25th Sisters by Heart published a practioner’s post on Fontan to Transplant:  Building Teams for Transition. Dr. Kurt Schumacher, MD MS, assistant professor and Medical Director of Pediatric Heart Failure and Transplant Program, University of Michigan Congenital Heart Center and C.S. Mott Children’s Hospital, was the guest author.

Click refer to http://www.sistersbyheart.org/content/practitioner-posts for more information.

On Friday, April 27th , Phoenix Children’s Hospital and Transplant Families will host a Facebook post airing of our Resource Fair Keynote Building Resiliency Through Your Child’s Transplant Journey with speaker Dr. Brenda Aranda, Ph.D., Director Cardiology Behavioral Medicine Cardiology Department at Phoenix Children’s Hospital and Assistant Professor: Child Health University of Arizona College of Medicine.

Click here to view: https://www.facebook.com/PhoenixChildrensHospital/
We may have late additions near the end of the week. We will follow up if we get notice of these additions.

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