Listing your child for transplant is one of the most frightening experiences a parent can feel. There are so many unknowns. So many questions. Transplant feels so foreign, like something other people go through.
The truth is that with your child’s doctors help and advice, listing your child for transplant can be a little less scary. Transplant Living has an excellent step by step guide that goes through the basics (http://www.transplantliving.org/before-the-transplant/getting-on-the-list/). About.com also has an great guide that details every step (http://surgery.about.com/od/beforesurgery/a/ListedForTx.htm). These guides are written through adults, but many of the steps apply to pediatrics as well. The only difference is that instead of just the patient (child) being evaluated for transplant, the whole family, especially the parents, are really being evaluated. It is the transplants team job to determine during evaluation if not only is the patient a good candidate for transplant, but also that the new organ in your child will be adequately taken care of.
If you are about to have your child listed for transplant please refer to these guides on the very basics to help prepare you in this very important step.